Intersex: New Interdisciplinary Approaches (INIA) Training Network
Role, dissemination and impact of clinical ethics in multidisciplinary teams on intersex in Europe
INIA is a new international research network which will train a cohort of 10 early stage researchers working collaboratively to develop knowledge that will inform policy making and practice across a range of key sectors. This Innovative Training Network (ITN) is funded by the prestigious European Union's Horizon 2020 research and innovation programme, Marie Skłodowska-Curie Actions, grant number No 859869. ITNs aim to train a new generation of creative, entrepreneurial and innovative early-stage researchers, able to face current and future challenges and to convert knowledge and ideas into products and services for economic and social benefit.
INIA addresses key issues for intersex wellbeing and rights, and it will develop topical applied outputs of relevance to stakeholders concerned to support the wellbeing and rights of intersex people, and intellectual resources. The specific healthcare, social and human rights issues of intersex people are often overlooked. They are diverse and continue to face exposure to multiple forms of human rights violations and discrimination, requiring cross-sectoral policy responses in fields including healthcare, education, and the law. INIA will enable a consortium of 21 organisations from 10 countries to work together on issues relating to intersex people and those with variations of sex characteristics, in a unique multidisciplinary and transectoral network. INIA is being established by the University of Huddersfield in partnership with the Université Libre de Bruxelles, Dublin City University, the University of Zurich, the Escuela Andaluza de Salud Pública / Andalusian School of Public Health and the Universitat Autònoma de Barcelona as the main partners.
INIA aims to develop Intersex Studies as an interdisciplinary field, building on the existing scholarship of intersex people, and developing intellectual resources across a range of key areas. The Network consortium will bring together academic and other organisations across several European countries, in order to enable the training of a cohort of early stage researchers who will conduct research and aim to gain PhDs. This will be achieved by the establishment of a doctoral programme, delivered by partner Universities in collaboration with NGOs (especially Intersex Activist and Advocacy organisations) and other organisations. We are appointing 10 Research Fellows to take part in this doctoral programme, each with their own specific research project that will form the basis for their PhD. Each Research Fellow will also help their team to deliver a work package that is relevant across the different individual research projects.
This project will take place in Switzerland at the Institute of Biomedical Ethics in close collaboration with the University Children's Hospital. A key opportunity provided by this post is that the successful candidate will be able to do a PhD in Biomedical Ethics. The unique project that you will potentially work on addresses to describe the professional composition of multidisciplinary team teams and the role of ethics, ethical decision-making and professionals with ethical backgrounds (1), to identify and categorize ethical problems/conflicts/dilemmas in paediatric decision-making from early infancy to late adolescence, including associated ethical tools, structures and know-how in supporting teams/families with intersex child (2), and to describe the impact of clinical ethics on decision-making and support about families/children with intersex variations (3) and producing a number of outputs as part of your PhD work, and in addition to it, all with the support of your supervisor/s and the wider network. If you are successful in getting this job you will take part in, and contribute to, 8 training events with the other Research Fellows that will take place in a range of countries, over the duration of the research. You will also have secondments at NGOs and Universities in Switzerland, Germany and Belgium which will enrich your training experience, research, and CV.
The details of the project are:
Role, dissemination and impact of clinical ethics in multidisciplinary teams on intersex in Europe
Objectives: To understand the role of ethics in decision making about intersex medical interventions across medics and healthcare professionals with different areas of expertise. It will address the gap in knowledge about ethics and intersex care, exploring the ethical problems faced by multi-disciplinary teams.
Expected Results:
1. Literature review on clinical ethics with a focus on intersex.
2. Completion of exploratory semi-structured interviews with medics and other professionals providing care for intersex children and their families (including surgeons, endocrinologists, paediatricians, urologists, geneticists, psychologists, social workers, and nurses) (up to 30 interviews across at least 8 countries).
3. Completion of EU wide survey of multidisciplinary teams and hospitals providing care for intersex children (minimum 60 responses).
4. Taxonomy of ethical questions and associated outcome indicators and related support tools.
5. Guidelines for support measures on ethical decision-making for medics and healthcare professionals.
6. eBrief of the findings for medics and healthcare professionals (in ES, FR, DE, EN).
7. Chapter for INIA eBook.
Offer Requirements
Skills/Qualifications
Qualifications:
Relevant degree/s with good grade/s (degree subjects could include medicine, law, psychology, cultural studies, politics, sociology, social policy) OR substantial experience of relevant work for example doing research, writing reports or academic writing
Knowledge:
Good knowledge of issues concerning sex, gender, and social inequalities.
Experience:
Ability to maintain confidentiality and to operate in an ethical way at all times.
Any potential conflicts of interest (such as previous collaborative or social relationships with any team members) must be declared on the application.
Applicants need to want to undertake teaching, teamwork, knowledge transfer, management of their project and some supervision of administrative staff) and raise public awareness.
Skills:
Good level of German language skills
A high level of English language skill is necessary as the project is in English
23-03-2024
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